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Session 4 HOW ARE CHILDREN, CARERS AND FAMILIES CONTRIBUTING TO THE DECISION MAKING?
Session Chair(s)
Katie Rizvi
Founder, Little People Association & Temerarii Club
The Romanian Community of Cancer Survivor Adolescents and Young Adults, Romania
The session will focus on both the technical and practical aspects of involving children and young persons’ advisory groups in decision making processes whether at regulatory, health technology assessment (HTA) or medicines research and development (R&D) levels. Discussions will include the point of view and expectations of different stakeholders.
Speaker(s)
Engagement with young patients
Nathalie Bere, MPH
European Medicines Agency, Netherlands
Patient Engagement
Yvonne Schmidt, PhD
Federal Joint Committee (G-BA), Germany
Scientific Advisor, Pharmaceuticals Department
Active Involvement of Children and Young People In Clinical Research Design
Pamela Dicks, PhD
Scottish Children's Research Network (ScotCRN), United Kingdom
Network Manager
Anna Sherriffs
Young Persons’ Advisory Group (YPAG) Scotland, United Kingdom
Young Patient Advocate