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DIA 2018 Global Annual Meeting


Using Advocacy Partnerships to Improve Real World Evidence in Clinical Trials

    Session Chair(s)
      Shazia  Ahmad

      Shazia Ahmad

      • Director, Patient and Physician Services
      • UBC, United States
    This session will demonstrate how advocacy groups can be effectively leveraged for protocol design and in capturing valuable information from standard clinical practice-information that is real-world evidence driven and much needed to develop effective clinical trials.
    Learning Objective : Discuss the use of advocacy groups in understanding factors in the real word setting outside of clinical trials that can help better understand a disease and develop drugs more effectively; Distinguish the type of information that can be learned from these groups in real world evidence that can influence the development of better medications
    Speaker(s)
      Isabelle  Lousada, MA

      How Do You Integrate the Patient Voice Into the Drug Development Process?

      Isabelle Lousada, MA

      • Chief Executive Officer and President
      • Amyloidosis Research Consortium, United States
      Mary  Dunkle

      Panelist

      Mary Dunkle

      • Vice President of Educational Initiatives
      • National Organization For Rare Disorders (NORD), United States
      Nadia  Bodkin

      Panelist

      Nadia Bodkin

      • President and Chief Executive Officer
      • EDSers United Foundation, United States