Using Advocacy Partnerships to Improve Real World Evidence in Clinical Trials
Director, Patient and Physician Services
UBC, United States
This session will demonstrate how advocacy groups can be effectively leveraged for protocol design and in capturing valuable information from standard clinical practice-information that is real-world evidence driven and much needed to develop effective clinical trials.
Learning Objective : Discuss the use of advocacy groups in understanding factors in the real word setting outside of clinical trials that can help better understand a disease and develop drugs more effectively; Distinguish the type of information that can be learned from these groups in real world evidence that can influence the development of better medications
How Do You Integrate the Patient Voice Into the Drug Development Process?
Isabelle Lousada, MA
Chief Executive Officer and President
Amyloidosis Research Consortium, United States
Vice President of Educational Initiatives
National Organization For Rare Disorders (NORD), United States
President and Chief Executive Officer
EDSers United Foundation, United States