Maintaining Patient Engagement in the Development of Patient-Reported Outcome (PRO) Measures: Comparative Effectiveness Research in Practice
Senior Research Director, Patient-Centered Outcomes
Mapi/ICON, United Kingdom
This session outlines the key issues in maintaining and maximizing patient engagement at all stages of the development of PRO and ePRO measures, with examples drawn from our experience of developing PRO measures. Recommendations are made regarding the most appropriate qualitative and quantitative approaches and a framework suggested for quantifying the degree of patient engagement during the multiple stages of scale development.
Learning Objective : Recognize the opportunities for patient engagement through all stages of PRO development; Evaluate the degree of meaningful patient engagement in PRO development.
Ways in Which Patient and Caregiver Recorded Outcomes and Assessments Will Affect Regulators, Industry, and Patients and Payers in the Coming Years
Christine McSherry, BSN, RN
Jett Foundation, United States